The CERN Foundation is a collaborative network with a commitment to connecting patients and caregivers – in addition to medical providers – who deal with ependymoma. This section of our site is dedicated to helping anyone affected by ependymoma connect with the foundation through patient stories and, perhaps most importantly, each other.
Ependymoma Awareness Day
This annual event creates awareness about this rare disease through a butterfly release, proclamations, and outreach.
Read about other patients and caregivers’ experiences with ependymoma diagnosis, treatment and survival. You can also submit your own stories, poems, or articles. We encourage you to share your personal journey with ependymoma.
Ependymoma Outcomes Project
Any patient with ependymoma is welcomed to participate. The ultimate goal of the survey is ensuring a uniformly high standard of care and improving our understanding issues faced by patients with ependymoma.
Interested in finding ways you can become actively involved in the CERN Foundation?
Sign Up For The Newsletter
You can join our mailing list by submitting your information. You can expect to receive e-mailed newsletters and important updates. View our previous newsletters.
CERN FAQ From the Website
Your questions answered. The CERN Foundation welcomes questions about ependymoma and will do our best to answer quickly and honestly.
Follow Us On Social Media!
You can follow the CERN Foundation on Facebook, Twitter, Pinterest and YouTube. The CERN Foundation updates these pages frequently with helpful information. You can also find other patients and caregivers that you can connect with.