Symptom Management & Support
Ependymoma is a rare tumor, and there are limited reports of the clinical course, treatment, and current health status of patients. Through the Ependymoma Outcomes Project (EO), accessible through this website, we have learned what issues people living with ependymoma face each day and throughout the course of illness.
In this section we address specific symptom management issues identified in the EO survey. This section is updated frequently, so check back often.
Adult and Pediatric Caregivers
There is no denying the difficulty of watching a loved one go through the emotional and physical pain of being diagnosed with a brain or spinal cord tumor. And the moment symptoms begin, your life as a caregiver begins and brings its own emotional and physical battles, as well.
This section gives you a starting point for managing your role as a caregiver.
Patient Grief and Support
The speed and suddenness of a diagnosis can be utterly overwhelming for all involved. Normal routines, expectations, and hopes for the future are often put on hold. As you face difficult treatment decisions or learn to cope with frightening symptoms, you may feel as if you are just getting by on a day-to-day basis. The grieving process often begins at the time of diagnosis.
This section gives you a starting point for managing the difficulties of being diagnosed with an ependymoma.