What can you do after receiving an ependymoma diagnosis?

An ependymoma diagnosis is a traumatic and overwhelming experience for both patient and caregivers. The process includes multiple doctor visits and unfamiliar medical equipment. Finally, once you receive your diagnosis, you likely will have many questions about your medical options.

In this section, you can learn about MRIs, the pathology process and prognosis statistics. We believe becoming familiar with these processes and their terminology can help you feel more comfortable when evaluating your medical decisions and options.

First Steps

One of the first things a patient and/or caregiver will do is to establish a medical team and center for treatment. You can view all of the medical centers that are part of the CERN network by visiting our CERN Centers page. You can also find medical providers that participate in the CERN network by visiting the CERN Members page. Finding a medical team that you can trust and feel comfortable with is an important part of the initial process and it’s important that patients feel like they are partners with their medical team.

You probably have lots of questions now that you or your loved one has been diagnosed. Know that it’s important to know what questions to ask your doctor and what questions to ask about treatment. You do not have to go through this experience alone. The CERN Foundation has a large number of resources and information so if you have any questions about your diagnosis or how to move forward, please contact us.