EOP Official Results
Through the Ependymoma Outcomes Projects, accessible through this website, people living with ependymoma commonly report on fatigue, pain and sleep disturbances during the course of illness.
This has been shown through research conducted by the CERN Foundation as part of the Ependymoma Outcomes Project.
It is important to talk with your doctor about any symptoms that are bothering you.
We are proud to report a recently published paper describing the first results from the Adult Ependymoma Outcomes Project. An abstract of the published paper can be found by clicking here.
We will be addressing specific issues with symptom management from the survey frequently in this section of the website.
Fatigue is common in people with all types of tumors and those who are undergoing treatment such as radiation and chemotherapy. As part of the Adult Ependymoma Outcomes (AEO) survey, you spoke to us about your challenges with fatigue. We listened and have provided strategies for coping with fatigue.
Pain is a common symptom of ependymoma. People with tumors in the brain may experience headache pain, whereas those with spine tumors may experience pain along the spine or radiating into the arms, legs or buttocks. As part of the Adult Ependymoma Outcomes (AEO) survey, we asked people with ependymoma to tell us about their pain.
Sleep disturbance is a common symptom that occurs in people with brain and spine tumors. The most common type of sleep disturbance is insomnia. Insomnia occurs if someone has trouble falling or staying asleep. It is estimated that up to 20% of the general population have disturbed sleep and as many as 60% of those with cancer. In this section, we explore this symptom and provide strategies for coping with it.