Ependymoma Parents Plan Music Event “Rock Away Kids Cancer”
The Rock Away Kids Cancer initiative was born when three mothers, who endured the hardship of seeing their child go through cancer treatment, joined forces to find a cure for childhood cancer. Jeannette Nienke, founder and co-founders Natalie Fabac and Mandy Gail Woods, developed the concept to get the nation behind the cause. Rock Away Kids Cancer’s mission is to raise awareness and funds nationwide to find a cure for childhood cancer that impacts so many children: one in 330 by the time they are 20. Ependymomas are the third most common form of childhood brain and spine tumors. Rock Away Kids Cancer will take place from coast to coast in the summer of 2015. Family-friendly concerts will appeal to all ages and feature a wide range of music styles. All profits will go towards children’s cancer research.
Message From Rock Away Kids Cancer Founder, Jeannette Nienke
Rock Away Kids Cancer came from a very personal and difficult experience as I saw my own son, Sebastian, battle an ependymoma brain tumor. Throughout this journey, I met mothers on an online support group on Facebook – EpendyParents, who shared the same sense of powerlessness. With my two close online friends, Natalie Fabac and Mandy Gail Woods, we decided to take action. This is how Rock Away Kids Cancer was born.
With the support of two charity partners: Alex’s Lemonade Stand Foundation – one of the nation’s leading charity organizations for children’s cancer research, and the Collaborative Ependymoma Research Network (CERN) Foundation – a non-profit organization that is focused on developing new treatments for ependymoma, improving outcomes and care of patients, ultimately leading to a cure – the kind of cancer that affected our own children. We plan on rocking the nation to find a cure for all children. Over the next few months, we will continue to raise awareness, forge partnerships, and finalize venues and concerts dates. Rock Away Kids Cancer will take place from coast to coast in the summer of 2015. We hope to see you there!
If you would like to get involved, contact firstname.lastname@example.org.
Message From Rock Away Kids Cancer Co-founder, Natalie Fabac
My 10-year-old son, Ethan, was diagnosed with grade II ependymoma brain cancer in September 2013. September is childhood cancer awareness month. I had no idea that a month like this even existed until after my son was diagnosed. The gold ribbon is the official ribbon of children with cancer worldwide. There were no gold ribbons, stickers, and shirts on store shelves showing their support. I only knew about this nationally recognized day by parents like myself who had been affected. My mission is to raise awareness nationwide. Awareness equals funding. Funding equals a cure.
– Natalie Fabac, Co-founder and Media Services Director at Rock Away Kids Cancer
Message From Rock Away Kids Cancer Co-founder, Mandy Gail Woods
My daughter, Morissa, was diagnosed with ependymoma on May 8, 2013. She was 11 years old. In the weeks before her diagnosis, she suffered greatly from the pressure. The tumor was pressing on her spinal cord. She had surgery to remove the tumor, and within a few days she was doing so much better! A week later, she sat next to me on the sofa and said, ‘Mommy, I want to help other kids going through this. I want to let them know that they should never give up! It is hard, but we are strong!’ My daughter is my inspiration…my hero!
– Mandy Gail Woods, Co-founder and Volunteer Services Director at Rock Away Kids Cancer